Interesting that I type these with plenty of paragraphs and punctuation but they publish on one large run on paragraph! Sorry about that! any suggestions?
wow: took until June 30th to figure out how to make paragraphs which am now doing! Still no photos but hang in there!
Thursday, February 27, 2014
2 days post surgery!
Tiverton house has free bikes and helmets to rent so Monday after pre op we rode to Santa monica a few miles west on wide bikelanes. Past hundreds of gorgeous houses and then 12 miles on cement bikepath the length of the beach. And 75 degrees perfect sun. Nice for day before surgery.
That was to be at 3tuesday but ahead of schedule so in at 12.30with going under about two . In recovery about six and never did See Dr Grillone as he had flight home about then. So glad he was there and The big team said they enjoyed him and hope he will do it in the east- Boston where he could be first in NE. He is my Botox dr and hopefully I won't need that anymore but maybe should just to support him. Thanks again for being here. Hope it was useful as a long way to come.
Now 48hours in recovery in two different well attended rooms. Great nursing, etc. Rather gruelling to say the least as huge quantities of phlemn I had been warned about by docs and other patients. Suction machine helps but can't take it with me tomorrow. No pain or soreness but tons of coughing loose and breathy dealing with the phlegm. Yuck. Last night I had delusions or fear that the muscle was cut too much so I would be breathy and unable to catch my breath ever pretty scary and not much sleep first day or night but better last night wih cough meds and ativan to calm me.
First meal arrived so will break now as eating and learning to swallow is another story. Feeling much better today. Great having Ruth and my sister Anne here too. Thanks for all your messages, prayers and best wishes. Incidentally I will have a smooth but very breathy soft voice for up to a year before volume builds back in with the newly reentervated nerves.
Google the op and doc as suggested above if you wish more details! probably for most this is more than enough. Send questions. Y V Er
That was to be at 3tuesday but ahead of schedule so in at 12.30with going under about two . In recovery about six and never did See Dr Grillone as he had flight home about then. So glad he was there and The big team said they enjoyed him and hope he will do it in the east- Boston where he could be first in NE. He is my Botox dr and hopefully I won't need that anymore but maybe should just to support him. Thanks again for being here. Hope it was useful as a long way to come.
Now 48hours in recovery in two different well attended rooms. Great nursing, etc. Rather gruelling to say the least as huge quantities of phlemn I had been warned about by docs and other patients. Suction machine helps but can't take it with me tomorrow. No pain or soreness but tons of coughing loose and breathy dealing with the phlegm. Yuck. Last night I had delusions or fear that the muscle was cut too much so I would be breathy and unable to catch my breath ever pretty scary and not much sleep first day or night but better last night wih cough meds and ativan to calm me.
First meal arrived so will break now as eating and learning to swallow is another story. Feeling much better today. Great having Ruth and my sister Anne here too. Thanks for all your messages, prayers and best wishes. Incidentally I will have a smooth but very breathy soft voice for up to a year before volume builds back in with the newly reentervated nerves.
Google the op and doc as suggested above if you wish more details! probably for most this is more than enough. Send questions. Y V Er
Monday, February 24, 2014
tomorrow at 3 is the surgery
Finally we are here at Tiverton House on the UCLA campus. Very nice accommodations and breakfast and even bikes we can borrow to ride to the beach, etc.as we did today following our intake appointment with Dr. Berke. He and his team are very professional and friendly and answered all my remaining questions: How long before I can eat: soon but have to be careful with swallowing and use thicket with liquids which I have purchased as advised.
May be able to return home sooner than next Wednesday in which case we can change our flights home for a small charge. That would be good as hotels are expensive though Tiverton reasonable. They had questions about my history and scoped my vocal chords but decided they could go ahead tomorrow as I am a good candidate though my age will make for a longer recovery than if I was younger. It may be up to a year before full voice returns. Will be breathy In the meantime like after Botox injections. This hopefully is like a permanent botox which I have now had twice a year for 25 years!
So my last food is tonight and then show up at the hospital at 12:30 for 3 PM 3 hour operation. Will let you know sometime after that how I am doing! It might be a few days but hope sooner! Stay tuned and know how much your messeges and calls have meant. I certainly don't feel alone. You are with me in spirit and Ruth and my sister Anne will be here too as well as my Botox Dr from Boston, Dr. Grillone who will be observing and hopefully making sure all goes according to plan.
Thank you all! More later. Now my last solid food before bed, a coconut donut and banana! Yea.
May be able to return home sooner than next Wednesday in which case we can change our flights home for a small charge. That would be good as hotels are expensive though Tiverton reasonable. They had questions about my history and scoped my vocal chords but decided they could go ahead tomorrow as I am a good candidate though my age will make for a longer recovery than if I was younger. It may be up to a year before full voice returns. Will be breathy In the meantime like after Botox injections. This hopefully is like a permanent botox which I have now had twice a year for 25 years!
So my last food is tonight and then show up at the hospital at 12:30 for 3 PM 3 hour operation. Will let you know sometime after that how I am doing! It might be a few days but hope sooner! Stay tuned and know how much your messeges and calls have meant. I certainly don't feel alone. You are with me in spirit and Ruth and my sister Anne will be here too as well as my Botox Dr from Boston, Dr. Grillone who will be observing and hopefully making sure all goes according to plan.
Thank you all! More later. Now my last solid food before bed, a coconut donut and banana! Yea.
Wednesday, February 19, 2014
one week to surgery
One week from now I should be done with the surgery to fix my Spasmodic Dysphonia which I have had since 1973. My Boston Med Center Botox MD is planning to be there to observe and I am delighted to have Dr. Grillone there. About mid jan I finally heard that insurance should pay and was given a pre op appointment with Dr Berke Monday Feb 24 with surgery the next day. He has done 350 plus of these ops with good success rate so I remain hopeful though it is scary.
Will check into Tiverton house Sunday afternoon with Ruth to be ready for Monday two blocks away on the UCLA campus. Should be two Nights in Ronald Regan Hospital, then back to Tiverton or visiting with new friends who have had the surgery. Home hopefully March 5 if all goes as planned and Dr Burke approves. Thanks for all your interest and support!!!
Google slad-r surgery or Dr Burke if interested.
Will check into Tiverton house Sunday afternoon with Ruth to be ready for Monday two blocks away on the UCLA campus. Should be two Nights in Ronald Regan Hospital, then back to Tiverton or visiting with new friends who have had the surgery. Home hopefully March 5 if all goes as planned and Dr Burke approves. Thanks for all your interest and support!!!
Google slad-r surgery or Dr Burke if interested.
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